Why?
Because yesterday, as I was going along minding my own business, I suddenly felt a *pop* and a *gush* sort of like a big blister breaking. The next thing I knew I was soaked.
I was working out. Had just finished a decent ride. Did I pee myself? I went to the bathroom and looked in the mirror and I was covered in yellowish gunk. My wound was oozing, literally draining yellow gunk.
Ok, I didn’t panic. Not yet at least. The wound never fully closed and had been cauterized twice. Maybe all this exercise was aggravating the adhesions? I called the surgeons office and we went through the checklist: no pain, no fever, regular appetite, bowel movement (the day before as this was still morning) etc. Nurse calls back after speaking to doctor and tells me keep the wound clean, bandaged and the surgeon will see me in the office on Friday. Ok, I can live with a little bandage til Friday no biggie.
But then I’m making dinner and serving the kids when I feel it again, another rush of fluid. I had a light grey T-shirt on so I see it getting soaked. Run into bathroom and remove bandage to find fluorescent green gunk. I’ve seen that color before and want to die on the spot. The kids hear me moan and upset but don’t want to know cause they’re eating. Change bandage call surgeon after hours.
Surgeon baffled but believes he knows what it is and it’s not good news.
An enterocutaneous fistula (ECF) is an abnormal connection that develops between the intestinal tract or stomach and the skin. As a result, contents of the stomach or intestines leak through to the skin.
I hear him trying to tell me it’s going to be ok when I can hear the gears in his head turning that we are in for a ride. Cat scans ordered for tomorrow. No immediate urgency unless I develop fever and pain.
I’m going to save the grossest details because it’s nasty. But basically when I don’t go to the bathroom some will leak out of the wound because the bowel had a leak and found a way out through the wound. Once I go to the bathroom normally the wound doesn’t leak much.
I spent the night googling and reading and I’m fucked. Even the surgeon told me to prepare for another difficult surgery.
I was supposed to start my job Monday.
I am out of my mind with so many thoughts. I literally can’t think straight right now.
I suppose we will know more after the surgeon.
M, oh no. I seriously had a mild vasovagal response reading this, which tells me how much I care and am invested in your healing journey. This is rough, but I am grateful that you got immediate attention and that you are being made a priority. We all care about you
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Reminds me of the moment when my now vascular surgeon walked up to me, introduced himself, and said, “You have a AAA – and it’s pretty big…” I am so sorry to hear this has happened and, honestly, it makes me worry about my step-daughter who underwent the same surgery and because shit happens when you least expect it.
Hang in there, let the doctors do their thing and if you can, try to just be chill.
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Urgh- nooooo!! I’m so sorry M!!
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Breathe — it will be OK. Have faith. Focus on positive thoughts.
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I’m so sorry
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