*Originally Published 1/14 and disappeared (sorry for the repost)
I had my first period since around Dec 5th. I should have predicted the outcome post menses: total and utter exhaustion. It is exactly the time my iron has naturally depleted (5 month mark) post the blood clot episode in 2015. It’s been 3 years now that I am dealing with this anemia and I hate it.
I made the appointment for the blood test and sure enough my iron is dropping, but not yet low enough for insurance to cover and expensive infusion. I hate this part. I have to wait through another period and about a month before my iron drops low enough to cover the infusion. This basically means I am sick and tired for the next 6-8 weeks.
I have begged the doctors in the past to be more aggressive in treating it, but they say they can’t approve the treatment until a certain point. After 3 years of examples, being pretty much like clockwork….I don’t see why they can’t be proactive with the infusion instead of waiting until I literally cannot get out of bed for days on end.
So most of December into January found me lying in bed, sleeping days away. I can find energy to get my son up and off to school, and occasionally do required errands. Maybe even one night out with family or friends. But then, sleep again for days.
Finally went for a second blood test and, as predicted, I am now anemic. Waiting for the doctor to get the approval for the iron transfusion. It irks me they can’t get back to me more quickly. I called and the nurses empathize but say the doctor is jam packed.
In addition, prior to my surgeries my gynecological options were hysterectomy, ablation or IUD – none of which I wanted. I should have gotten the IUD when I had the chance! I was too afraid of the estrogen because the hormone is what caused blood lots in 2015, the ablation seemed like a better choice until I did research that said it could put you into early menopause, and I just didn’t want surgery for a hysterectomy (to explain that: I didn’t want surgery that was going to decrease my libido and increase my depression, less so about the actual surgery itself – though in hindsight the chances are over 75% I would have ended up with similar internal bowel issue that I have now due to all my adhesions). Now, I have zero gynecological options because of all the issues I just experienced.
This means, I live with chronic anemia and iron infusions until my period stops. The, hopefully, the anemia disappears naturally. But it’s still a shot in the dark.
I now feel like my life is passing me by and I can’t seem to grasp hold of it. I am getting very, very worried about money because I have none. We have depleted all of our excess the past 4 months and credit card debt. I was really hoping to not have to tap into my savings, but that will have to be the next step.
I’m hoping my mental and physical states pick up soon, because I feel pretty useless at the moment.